Category: Illness

The Table—

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“It was the best of times, it was the worst of times,” wrote Charles Dickens in A TALE OF TWO CITIES. A long while back, when I attended a debriefing conference after a year of missions in the Dominican Republic, the instructor used this phrase to describe the mission experience. Its profoundness struck and resonated with me as never before. 

Despite this, and despite the fact that I have chosen drifting between light and darkness as the theme of the novel I’ll finish one day, until recently, I somehow missed that it is one of MY life themes. I realized it when a beloved former student gifted me with a children’s book for my baby shower. Inside the cover, she wrote a note stating that the book reminded her of me because of the many conversations we had shared about all the beauty, challenges, joy, and sorrow life simultaneously offers us in our journeys.

I’ve been thinking about all of this again recently as I enjoy the rapture of watching my baby girl grow. I should say that due to sleep deprivation, my battle with chronic pain, and the busyness of trying to find balance after returning to work, I work at being present enough to enjoy every moment.

As I search for balance and joy amidst the challenges, I’m reminded of a phrase from the favored Twenty-third Psalm. David wrote of our Shepherd, “He prepares a table before me in the presence of my enemies.” IN the presence of my enemies, a table is prepared. I can picture that table. It’s a long banquet table set up on a sprawling porch, prepared with the choicest food and drink, decorated with flowers and fine linens, lit with candles. As the enemies of sleeplessness and pain and the frantic pace of American life look on, there I am, seated with my Shepherd at the close of day. My daughter and family and treasured friends surround us. We smile and laugh and enjoy one another as the sun sets. All the while, my enemies lurk and darkness descends.

Some days, as I practice gratitude in stillness, it’s relatively simple and easy to some to the table. Others, as as is typical of my dinnertime reality, I struggle to cease striving and sit still. A friend once described this type of experience to me as picking at the crumbs on the floor when I’ve been invited to a feast. Still other days, it feels as though I must fight my way through bramble and thorned brush just to find where the table IS. But the invitation is always there. 

My Lord says, “Come, all you who are thirsty, come to the waters; and you who have no money, come, buy and eat! … Listen, listen to me, and eat what is good, and you will delight in the richest of fare” (Isaiah 55:1a;2b). As counterintuitive as it may seem, the beautiful table prepared is often an altar. I reach it best by kneeling, laying down my best efforts, perfectionism, and striving to do it all on my own—laying down selfish ambition and my ideals of what the table should look like, who I’ll be seated with, what will be served, and how long the meal should last. Above all, I must accept that my task is to enjoy THIS meal without worrying about the next, without being able to control that my enemies haven’t left me in peace. I must claim the peace and respite offered anyway. 

In her stunning book, AN ALTAR IN THIS WORLD: A GEOGRAPHY OF FAITH, author Barbara Brown Taylor invites, “Wherever you are, you live in the world, which is just waiting for you to notice the holiness in it. So welcome to your own priesthood, practiced at the altar of your own life. The good news is that you have everything you need to begin.”

“Invincible Summer in the Midst of Winter…”

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Okay, so it’s late April and  officially spring, but in southwestern Colorado, it can be hard to tell in the month of April. Admittedly, we’re officially spoiled here–our state sees the sun shine an average of 360 days per year. This month, a couple hours a day is often all we get. The wind, cold, icy rain, and occasional snow give it the unmistakable feel of ongoing winter. With a global pandemic and the isolation of sheltering in place, it’s easy to let the doldrums of the season overcome. 

And yet, the red-winged blackbirds who arrived over a month ago sing their spring song and balance on the thinnest of branches regardless of the storms. They remind me of the thoughts of great thinkers of long ago. Albert Camus wrote, “In the midst of winter, I finally discovered that deep within me lies an invincible summer.” Transcendentalist Henry David Thoreau encouraged, “Live each season as it passes; breathe the air, drink the drink, taste the fruit, and resign yourself to the influence of each.” What lovely reminders that wherever we’re at, there are pleasures and beauty to be found and enjoyed, moment by moment. Summer can always be cultivated within us.

In my own winter mentality moments, I continue to grieve for the loss of a career I loved due to poor health. Although it’s been a couple of years since I quit teaching full-time, I struggle to find my place in the professional world. For the second year in a row, I applied for a job I hoped might be the solution and didn’t get it. As I lamented to a friend the difficulty of no longer being valued or known in this professional realm, she reminded me of the TRUTH. I am absolutely valued and known, seen and heard. My God has not forgotten me and will walk with me through this season. Psalm 18:19 assures me He brings me out into a place of abundance because He delights in me.

 
In Lamentations, the prophet Jeremiah, writing in a time of great personal and societal suffering, said, “Because of the Lord’s great love we are not consumed, for His compassions never fail. They are new every morning; Great is Your faithfulness” (Lam. 3:22-23, NIV). Brother Lawrence, a saint of old, saw all men like trees in winter, stripped of color, leaf, and anything of value–yet loved unconditionally. Though I am a humble tree in winter, struggling toward warmth and light, I will “…live this season as it passes…” knowing “…within me lies an invincible summer.”

“Just Another Ordinary Miracle Today”

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For the second time this year, my husband has undergone major surgery. The last time, it was an emergency situation that caught us both by surprise, almost took his life, and required a month of living in the hospital. This time, we planned for the follow-up reversal surgery. Though I feared our lives would spin out of control again the moment we stepped into the hospital, things went far better than expected. They found few symptoms of his auto-immune disease, he required no time in ICU, and we left after a stay of three short days, with the doctors and nurses amazed at his rapid healing.

 

I wish I could say it hadn’t come as a surprise to me. It’s true–I’ve prayed and believed for his healing many times over the past several months. Apparently, however, there were places of disbelief I held back. The moments I allowed my fear to be bigger than my faith are greater than I would like them to be. This experience, as well as others, provides a lesson in POSITIVITY. An unknown quote posted on my wall encourages me to become a “possibilitarian.” Eventually, gradually, purposefully…I hope and will work for conversion.

 

To ground myself, I remember the cadence of gratitude that came after a month in the hospital last spring: 

  1. Sleeping and waking up in our own bed, not to mention getting to sleep in the same bed.
  2. Cooking and eating our own food…mmmm…though I’m sure my husband will occasionally miss those mystery meat patties from the hospital.
  3. Looking out at the mountains instead of concrete and highway traffic.
  4. Sitting in the sun instead of a hospital bed as the sound of windchimes replaces hospital alarms. 
  5. Being outside and breathing fresh air with our dogs, enough to bring us both to tears! 
  6. Being able to sit on our couch without constant interruptions from the IV monitor or those we affectionately called the “cuddle police” at the hospital.
  7. Hot showers.
  8. Better sleep. No more daily or 4:30 am IV draws or middle of the night interruptions. 
  9. No more 6:30 am visits from the team of doctors, though we are thankful for the care they provided.
  10. Returning to life, not as we knew it, but some semblance thereof. 

 

Sarah McLachlan’s beautiful song, “Ordinary Miracle” reminds us that each day is full of these possibilities:

“It’s not that unusual

When everything is beautiful.

It’s just another ordinary miracle today.”

“Thoughts of God…”-

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Solomon tells us in Proverbs 23:7 that, “As a man thinks in his heart, so is he.” The apostle Paul encourages us in Philippians 4:8 to think on whatever things are true and just and lovely and honorable. With hundreds, even thousands, of thoughts entering our minds each and every hour, these verses are among the greatest challenges offered to us, yet also numbered in the most vital to our well-being.

 

How easy it is to allow our thinking to become negative or fixated on difficult circumstances–how natural to let unforgiveness or bitterness creep in! If our minds focus on such things, however, our hearts and speech overflow. As the modern saying goes, “What we focus on, grows.” I have been guilty of focusing on my own circumstances and pain recently–perhaps always, and I have seen the poor fruit resulting.

 

Words from an old friend call to me, “Genuine faith does not look at itself–it looks at God. When I feel in pain, the enemy is trying to get me to look at myself and look away from my Healer. When I feel insecure, then the enemy is trying to get me to look at myself and will remind me of my failings. So instead of trying to have more faith, I will try to look to Christ–remembering all His perfection, faithfulness, and goodness…. And I am in Him.”

 

Right thinking is one of the only sure foundations for living but it seems a monumental task. So how do I get there? As my friend encourages, I must focus on my Healer instead of the challenges at my doorstep or the ache in my heart or the pain in my body. I’m often reminded of King Jehosaphat’s story in II Chronicles 23–even when the circumstances are insurmountable, gratitude, praise, and prayer are always my way out. Author and researcher Brené Brown finds that the simple daily practice of keeping a gratitude journal is one of the biggest factors in cultivating the wholehearted attitude of gratitude. Spending time in God’s Word and in worship daily mold us into the image of Christ. The little things we do every day really do make a huge difference in our overall health and happiness.

 

Yet I know that if it’s up to me, my thinking and attitudes will change by small degrees–I’m dependent on the Holy Spirit for deep heart and life transformation. Missionary Amy Carmichael wrote a beautiful poem entitled “Thoughts of God” that begins, “Think through me thoughts of God/ My Father quiet me/ Till in Thy holy presence hushed, I think Thy thoughts with Thee.” He waits for me to surrender in order to be changed, to turn my eyes continually upon Him, but regardless, one thing can never change…I am in Him.

***Photo credits to lovedoes.org

Perspective & Gratitude…

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It’s amazing how an unexpected trip to the emergency room and stay in the hospital can provide a new perspective on things. After two intestinal surgeries to remediate the effects of his Crohn’s Disease, my husband is finally beginning to heal, and we are grateful.

One of the biggest things I’ve learned is that marriage worked–we truly are one. As my husband has bravely suffered countless procedures, pokings and proddings, two operations, the night of the drug-induced coma between them, the intense sleepless days in the ICU after, and the indignity of the ileostomy bag he’ll need for several more months, I have felt at least a small share of his pain in it all. Every time I have to leave him or be separated from him or watch them stick something else into him, I physically feel the pain of it and my heart breaks for him. Often it feels as though I’m leaving a part of myself behind. Despite the difficulty of all of this, we know that God is making us stronger and more united, increasing our love for one another day by day. Mikael is loved by all the nurses and providers here for his positive attitude and the way he thanks them for everything they do, even those that are painful or uncomfortable. I come to admire my Mikael more every day too.

Each one of those experiences that’s been hard or humbling or uncomfortable we’re doing our best to bless, knowing that when you bless something it loses its power to hurt you. So we bless the N/G tube in his nose that made him gag and prevented him from turning his head. I bless the nurses that see him naked and get irritated with my questions or requests (though overall, they’ve been wonderful!). We bless each thing as an instrument of God’s healing and growing work in our lives.

We’re learning to give thanks for each small miracle, and we’ve had a lot this week! We got to leave the ICU and get onto a regular ward floor, enabling Mikael to get some better rest. We’ve had good visits from family and friends and feel love and support from those who are far away. Mikael got his N/G tube out and can move his head freely! On other days he got his catheter out, an IV taken out of his left hand, and one out of his right hand. Yesterday, they took off his wound covering and the wound-vac pump that went with it. Then, the miracle of all miracles, I got the first hug I’d had in almost a week because he was free enough of tubes to make it possible!

Mikael’s making some physical strides of progress. He was able to walk all the way down the ward hallway and sit outside on the patio and I don’t think we’ve ever been so grateful to look out at the I-225 traffic on a cloudy day and feel the breeze :). Yesterday, Mikael got his first bite of real food in twelve days and began to weep it tasted so good. Today, he had his first shower in six days and it left him speechless. Both of us may sleep an hour or ninety minutes at a time here at night, but we’re just so thankful to get that much, and that we can be together, and that he’s okay.

We know that our Father is good and that we have never been out of His care. That’s definitely been proven to us by having so many beautiful loved ones in our lives! As well as we may know them, we’re learning again the words of Paul by heart, “Rejoice always; pray without ceasing. In everything, give thanks, for this is the will of God for you in Christ Jesus” (I Thessalonians 5:16-18). My favorite author Wendell Berry said it well too, “What we must do is this: ‘Love always, pray continually, in everything give thanks.’ I’m not all the way capable of it, but I know those are the right instructions.” These events that have interrupted the normal events of our life also serve as an invitation to draw even more near to God’s heart–gratitude is one of our paths and we have chosen to take it.

Stepping Up…

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After almost nine years with chronic illness and pain, I definitely have my days where I get discouraged. I’m beyond thankful I have a body that moves and can do most things for itself, but it takes hours of the day to keep it in that condition. Despite my best efforts to live in health, it often feels as if my body continues to fall apart. In II Corinthians 4:16-17, the Bible says this is no surprise! “…Therefore, we do not lose heart. Though our outer self is wasting away, yet our inner self is being renewed day by day. For our light and momentary affliction is producing for us an eternal glory that is far beyond comparison.…” I love that this passage, full of the seemingly distressing news that our bodies are indeed wasting away, begins with, and “…Therefore, we do not lose heart.” This is also the chapter that tells us, “…but we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us” (II Corinthians 4:7).

 

Author Roy Lessin writes, “Everything in this world is moving in a downward direction–our bodies are a little older than they were yesterday; the parts in our cars have more wear than they had yesterday; even the earth is aging like a worn garment. In God’s kingdom, things are just the opposite for us. Everything moves in an upward direction-we go from faith to faith, from glory to glory, & from strength to strength. Our characters are being conformed to the image of Jesus, our spiritual lives mature, our love for the Lord deepens, & He becomes more precious with time. Today you can confidently say, ‘It is well with my soul…& it will be even better tomorrow.’ ”

 

As we journey through this broken world with bodies and spirits that can often feel broken as well, may we be surrounded by the love of friends and family and a company of great hosts that aid us in our voyage.

“Calling All Angels”

by the Wailin’ Jennys

A Spacious Place…

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Just now I’m listening to the song of wind chimes blowing in a gentle summer breeze outside my window. Curtains rustle as the light filters in. The dogs sleep in a mix of sun and shade under a tree where apples ripen in preparation for the autumn harvest. I sit at the table with the extraordinary gift before me of a peaceful, quiet time in which to read and reflect and write. As friends begin teaching children for a new school year, a blessing we once shared, I have a whiff of nostalgia, but breath a deep sigh of relief, for I know it had become too much for my fragile body.

 

A man walks his clomping horse up the dirt road where we live in this one-of-a-kind small mountain town. Though late August, the tundra on the hills has begun to change and the evenings are cooler. I settle into the weekday morning quiet of this world and feel deep gratitude for the season of rest I’ve been granted in this beautiful and spacious place. Studies completed, new paths opened and explored, more adventures and learning await and good work will need to be done. But for now, this day, I rest and give thanks.

 

Many times this was among the things only hoped for and imagined. That being said, it is important that I remember: my Father God and loving friends generously sacrificed and gave to share this with me. Both have been oh so sweet and faithful. As Psalm 18:16-19 proclaims, “He reached down from on high and took hold of me; He drew me out of deep waters. He rescued me from my powerful enemy, from my foes, who were too strong for me. They confronted me in the day of my disaster, but the LORD was my support. He brought me out into a spacious place; He rescued me because He delighted in me.”
As author Ann Voskamp states, the act of remembering re-members us, helping rejoin the broken pieces. A dear friend reminded me today: there have been miracles…. there will be miracles. It’s good to remember. The chimes sound as the winds stir a song of praise.  

Whether “Down in the Valley” or Standing  “Upon the Mountain of God”…

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I’m in a really beautiful, beautiful season of my life right now. I have the opportunity to rest a little and chase a few dreams. I’ve fallen in love with the best man I’ve ever known, and even though there have been a few challenges for a Colorado girl pursuing a long-distance relationship with a Puerto-Rican (mostly three classes 4-5 hurricanes!), overall, I’m filled with gratitude every day for the sweetness of it all. As someone said long ago, it really is the greatest thing we’ll ever learn, just to love, and to be loved in return. This learning process is one that has given me the gift of getting to see the top of the tapestry the Lord is weaving in my life, when the previous thirty-five years have felt mostly like the underside view. In essence, my present in this present time is to stand upon the mountain of God with the one I love, looking back on the valleys we have separately crossed, as well as the deserts and hills we have independently wandered and climbed. We both look back on the last ten years of our lives, seasons that felt mysteriously dark and lonely to us both, and can now see so many ways God used them to prepare us for one another and the ministries to which we feel He is calling us. Our God is truly such a master architect and designer!

 

But, at the same time that my beloved and I are standing on top of the mountain of God, many others in my life are really hurting down in the valley. Good friends face the devastating betrayal and heartbreak of broken relationships. Another continues to desperately miss the husband she lost to illness. One is watching her uncle lose his battle against cancer, and her aunt face the prospect of losing a second husband to a terminal disease. I watch others suffer chronic pain or prolonged economic or relational difficulties. The people of Puerto Rico and México continue to suffer in the wake of shortages and hardships resulting from natural disasters. Many of the residents of Las Vegas grieve loved ones who tragically lost their lives to a mass shooting. As we all know, this world has no shortage of heartaches or joys. It is full of darkness, and it is full of light. And yet, even in the valley, we can hear the winds of promise blow, as a very old American folk song: “Down In the Valley” by Burl Ives says…

 

“Down in the valley, valley so low

Hang your head over, hear the wind blow

Hear the wind blow love, hear the wind blow

Hang your head over, hear the wind blow” (Lead Belly).

 

Whether this reaches you down in the valley today, standing upon the mountain of God,  or somewhere in between, may you hear in the wind the whisper of our Savior saying your name, and speaking of His unchanging and unfailing and unfathomably great love for you. May His voice fill your heart to overflowing; may He bring you peace. It’s funny, because all of this has been on my heart to write for so long, the title has been typed and awaiting me on my computer, and then this morning, I heard a song on the radio that was new to me, that perfectly expresses it all. I hope “Hills & Valleys”, by Tauren Wells, ministers to you, as it did to me. Wherever you are, may you know, without a doubt, you’re “safe inside [His] hand”.

 
“I’ve walked among the shadows
You wiped my tears away
And I’ve felt the pain of heartbreak
And I’ve seen the brighter days
And I’ve prayed prayers to heaven from my lowest place
And I have held the blessings
God, you give and take away
No matter what I have, Your grace is enough
No matter where I am, I’m standing in Your love
On the mountains, I will bow my life
To the one who set me there
In the valley, I will lift my eyes to the one who sees me there
When I’m standing on the mountain aft, didn’t get there on my own
When I’m walking through the valley end, no I am not alone!
You’re God of the hills and valleys!
Hills and Valleys!
God of the hills and valleys
And I am not alone!
I’ve watched my dreams get broken
In you I hope again!
No matter what I know
Know I’m safe inside Your hand.”

 

***Photo Credits: Lovedoes.org

Accepting Joy…

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Part of my very part-time employment at present is working with a woman who also has a severe neurological condition, though hers is far more severe. I model a few exercises and provide a little massage and stretching; she models so much more for me. She’s been sick for most of thirty years, and has spent thirteen of those paralyzed from the waist down and regulated to a wheelchair. And yet, she always has a smile on her face. When I asked her how she was able to be so upbeat and positive, she said that she wouldn’t want the husband who’s been her caretaker all those years to have to live with a grump. This made me smile; it almost seems like a casual and lighthearted approach to coping with illness, but it is most definitely far more. Long ago, she made a very intentional choice to live in acceptance, gratitude and joy, one I’m sure she has had to make that choice over and over again, but she has. Hers is a very cultivated positivity held perfectly in tension with practical surrender, and they end result is joy.

 

She calls it grace. It reminds me of what Ann Voskamp once wrote: “Grace is like the wind. It finds us as we are, but it does not leave us as we have been. All is grace.” Grace has met her anew each day in exactly the place she is; it continually shapes and molds her into the image of God. She’s a willing vessel in the hands of a skillful potter; anyone has only to look at my friend’s radiant countenance to be awestruck by its fragile strength. She’s a former elementary teacher, a mom and wife and daughter and sister and aunt and friend. She’s a quilter and a prayer warrior and a blessing to all who know her. I’m so very thankful: in a season of struggling to accept my own challenging circumstances, or perhaps simply arriving in the place where I actually have accepted them, God has given me this beautiful example. I want to accept the joy that fills and surrounds me and say with my friend and the saints of old, as voiced by the prophet Isaiah: “And yet LORD, you are our Father. We are the clay, you are the potter” (Isaiah 64:8).

 

*Photo by Ann Voskamp. 

An Iron Will: A Tribute to Georgine…

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Tomorrow is Independence Day, a celebration of what it means to know free life. The Fourth of July marks not only that for me: it is both the anniversary of a friend’s spiritual birthday in 1950, as well as that of her “home-going” sixty-four years later. She’s been gone for three years now, and it still doesn’t seem possible that’s a reality; I can hear her voice as if it were yesterday. From the day I met her when I moved to this area in 2008, she said I was a kindred spirit and adopted me as a granddaughter. She called me her “Sweet Pea”; I called her my “Mama G”. She reminded me of the grandmother I lost when I was nine years old: Mama G’s quiet strength, obdurate determination, compassionate presence and vocal faith mirrored those of my Grandma Thelma. I was instantly at home with her.

 

Mama G was an example of the faith and perseverance of the saints to all who knew her. She modeled for me how one could live well with serious illness, something she coped with admirably for almost half her life: the chronic and inflammatory autoimmune disease Lupus targeted her as a young mother. Everything she did over the next decades came at a cost, but she counted it all worthy of the price she paid. She told me often with great sincerity that she counted it a true joy to share even a small bit of the suffering that was our Lord’s, and she lived out its truth. Her best friend says she had an “iron will”. As Proverbs 27:17 says, “As iron sharpens iron, so one man sharpens another.” She helped all her loved ones (in other words, everyone she knew) to be shaped into the mold of our Savior. In the spring of 2014, she contracted pancreatic cancer, the same disease took my Grandma Thelma’s life. They say it’s the most painful way to die: since the pancreas sits on a bundle of nerves that travel throughout the whole body, its sensations are akin to those of crucifixion. Though a nerve block relieved that pain for a while, in the end she suffered its fullness. Again, she counted it all joy and faced it with that iron will, her eyes on Jesus. A few short months later, she went Home to be with God. In life and in death, she celebrated free life that did not come without a cost; her soul at last found its final rest. 

 

I am only one who loved this precious woman of God, she was precious to many, but I remember and miss her every single day. As I face each new dawn and dusk, I hear the words to one of her favorite hymns Carolina Sandell Berg, modeling the acceptant trust with which she lived all the days of her life, Day by Day:

 

Help me then, in every tribulation,

So to trust Thy promises, O Lord,

That I lose not faith’s sweet consolation,

Offered me within Thy holy Word.

Help me, Lord, when toil and trouble meeting,

E’er to take, as from a father’s hand,

One by one, the days, the moments fleeting,

Till with Christ the Lord I stand.